{"id":60332,"date":"2024-12-07T18:24:09","date_gmt":"2024-12-07T18:24:09","guid":{"rendered":"https:\/\/www.africa-press.net\/botswana\/all-news\/influencers-selling-fake-cures-for-polycystic-ovary-syndrome"},"modified":"2024-12-07T18:50:29","modified_gmt":"2024-12-07T18:50:29","slug":"influencers-selling-fake-cures-for-polycystic-ovary-syndrome","status":"publish","type":"post","link":"https:\/\/www.africa-press.net\/botswana\/all-news\/influencers-selling-fake-cures-for-polycystic-ovary-syndrome","title":{"rendered":"Influencers Selling Fake Cures for Polycystic Ovary Syndrome"},"content":{"rendered":"<p><span style=\"color: #ff6600\"><strong>Africa-Press &#8211; Botswana. <\/strong><\/span><b>For 12 years Sophie had been experiencing painful periods, weight gain, depression and fatigue.<\/b><\/p>\n<p>She had been diagnosed with polycystic ovary syndrome (PCOS), a hormonal condition that affects about one in 10 women, but she struggled to get medical help.<\/p>\n<p>She felt her only option was to take her health into her own hands, and it was at this moment that Kourtney Simmang came up on her recommended page on Instagram.<\/p>\n<p>Kourtney promised to treat the \u201croot cause\u201d of PCOS, even though researchers have not yet identified one. She offered customers laboratory tests, a \u201chealth protocol\u201d- a diet and supplement plan &#8211; and coaching for $3,600 (\u00a32,800). Sophie signed up, paying hundreds of dollars more for supplements through Kourtney\u2019s affiliate links.<\/p>\n<p>Dr Jen Gunter, a gynaecologist and women\u2019s health educator, said Kourtney wasn\u2019t qualified to order the tests she was selling, and that they had limited clinical use.<\/p>\n<p>After nearly a year Sophie\u2019s symptoms hadn\u2019t improved, so she gave up Kourtney\u2019s cure.<\/p>\n<p>\u201cI left the programme with a worse relationship to my body and food, [feeling] that I didn\u2019t have the capacity to improve my PCOS,\u201d she said.<\/p>\n<p>Kourtney did not respond to requests for comment.<\/p>\n<p>Medically unqualified influencers &#8211; many with more than a million followers &#8211; are exploiting the absence of an easy medical solution for PCOS by posing as experts and selling fake cures.<\/p>\n<p>Some describe themselves as nutritionists or \u201chormone coaches\u201d, but these accreditations can be done online in a matter of weeks.<\/p>\n<p>The BBC World Service tracked the most-watched videos with a \u201cPCOS\u201d hashtag on TikTok and Instagram during the month of September and found that half of them spread false information.<\/p>\n<p>Up to 70% of women with PCOS worldwide have not been diagnosed, according to the World Health Organization (WHO), and even when diagnosed, women struggle to find treatments that work.<\/p>\n<p>\u201cWhenever there\u2019s a gap in medicine, predators take advantage,\u201d said Dr Gunter.<\/p>\n<p>The main false or misleading claims shared by these influencers include:<\/p>\n<p>PCOS can be cured with dietary supplements<\/p>\n<p>PCOS can be cured with a diet, such as the low-carbohydrate high-fat keto diet<\/p>\n<p>Birth control pills cause PCOS or worsen symptoms<\/p>\n<p>Mainstream medication may suppress PCOS, but doesn\u2019t address its \u201croot cause\u201d<\/p>\n<p>There is no evidence that highly restricted calorie diets have any positive effect, and the keto diet may make symptoms worse. Birth control pills do not cause PCOS and in fact help many women, though they don\u2019t work for everyone. There is no known root cause for PCOS and there is no cure.<\/p>\n<p>A spokesperson for TikTok said the company does not allow misleading or false content on the platform that may cause significant harm.<\/p>\n<p>A spokesperson for Meta said user content on women\u2019s health is allowed on the platform with \u201cno restrictions\u201d. The company said it consulted with third parties to debunk health misinformation.<\/p>\n<p><b>What is PCOS?<\/b><\/p>\n<p>PCOS is a chronic hormonal condition that affects an estimated 8-13% of women, according to the WHO<\/p>\n<p>The NHS says symptoms include painful irregular periods, excessive hair growth and weight gain<\/p>\n<p>PCOS is one of the most common causes of infertility, the NHS says, but most women can get pregnant with treatment<\/p>\n<p>The BBC has spoken to 14 women from Kenya, Nigeria, Brazil, the UK, US, and Australia who tried different products promoted by influencers.<\/p>\n<p>Nearly all mentioned Tallene Hacatoryan who has more than two million followers across TikTok and Instagram.<\/p>\n<p>A registered dietician, Tallene sells supplements at $219 (\u00a3172) and access to her weight loss app for $29 (\u00a323) a month. She warns people against pharmaceuticals such as the birth control pill, or the diabetes drug, metformin, both of which have been found to be helpful for many women with PCOS.<\/p>\n<p>Instead she encourages her audience to heal \u201cnaturally\u201d, with her supplements. She puts a lot of emphasis on weight and what she calls \u201cPCOS belly\u201d, referring to fat around the abdomen.<\/p>\n<p>Amy from Northern Ireland, decided to follow some of Tallene\u2019s advice after struggling to get help through her GP.<\/p>\n<p>\u201cPCOS belly was exactly where my insecurities were,\u201d she told me.<\/p>\n<p>Tallene\u2019s advice is to reduce gluten and dairy, and to follow the keto diet. But while a healthy diet can help with PCOS symptoms there is no evidence that gluten and dairy have a negative effect.<\/p>\n<p>In Amy\u2019s case, the keto diet regularly made her sick, and she found it hard to cut out gluten and dairy products.<\/p>\n<p>\u201cIt makes you feel like you failed,\u201d she said. \u201cLooking back, I wasn\u2019t as heavy then, but these people would make me feel worse, and you\u2019d want to do more diets, or buy more supplements.\u201d<\/p>\n<p>Dr Gunter told the BBC influencer diet plans such as these could \u201cabsolutely create an eating disorder\u201d.<\/p>\n<p>Tallene did not respond to the BBC\u2019s request for comment.<\/p>\n<p>Amy said her GP had offered her hormonal birth control to manage her symptoms, but didn\u2019t have any other ideas for treatment. She was told to come back if in future she wanted to get pregnant.<\/p>\n<p>Dr Gunter said this is a vulnerable patient group that may struggle with feelings of helplessness without access to treatment. She said misinformation often caused patients to delay seeking medical help, and that this could lead to the development of further conditions, such as type 2 diabetes.<\/p>\n<p>In Nigeria, Medlyn, a medical student, is trying to tackle some of the shame surrounding PCOS. After trying diets and supplements to no avail, she now encourages other women to consult with their doctors and embrace evidence-based treatment.<\/p>\n<p>\u201cWhen you\u2019re diagnosed with PCOS it comes with so much stigma. People think you\u2019re lazy, you don\u2019t look after yourself, that we can\u2019t get pregnant,\u201d she said. \u201cSo nobody wants to date you, nobody wants to marry you.\u201d<\/p>\n<p>But she is now embracing some of her PCOS features. \u201cIt\u2019s been a hard journey to accept my PCOS, my hair, my weight,\u201d she said. \u201cThese things make me different.\u201d<\/p>\n<p>Sasha Ottey of the US-based charity PCOS Challenge said medical treatment usually enables people with the condition to get pregnant.<\/p>\n<p>\u201cWomen with PCOS have the same number of children as those without,\u201d she said. \u201cYou just might need a bit of help getting there.\u201d<\/p>\n<p>Dr Gunter said that women who aren\u2019t getting help from a general practitioner should ask to see a specialist.<\/p>\n<p>\u201cSome women need a trusted endocrinologist or a trusted obstetrics and gynaecology specialist for that next level of management.\u201d<\/p>\n<p>Sophie and her doctors are still trying out possible treatments, looking for one that works for her.<\/p>\n<p><strong>For More News And Analysis About <span style=\"color: #ff6600\">Botswana<\/span> Follow <span style=\"color: #ff6600\">Africa-Press<\/span><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Africa-Press &#8211; Botswana. For 12 years Sophie had been experiencing painful periods, weight gain, depression and fatigue. She had been diagnosed with polycystic ovary syndrome (PCOS), a hormonal condition that affects about one in 10 women, but she struggled to get medical help. She felt her only option was to take her health into her [&hellip;]<\/p>\n","protected":false},"author":84,"featured_media":60331,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2,9],"tags":[234],"class_list":["post-60332","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-all-news","category-miscellaneous","tag-botswana"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.1 (Yoast SEO v27.0) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Influencers Selling Fake Cures for Polycystic Ovary Syndrome - Botswana<\/title>\n<meta name=\"description\" content=\"For 12 years Sophie had been experiencing painful periods, weight gain, depression and fatigue. 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