{"id":26893,"date":"2022-10-22T18:02:13","date_gmt":"2022-10-22T18:02:13","guid":{"rendered":"https:\/\/www.africa-press.net\/ghana\/uncategorized\/is-this-going-to-be-my-life-now-heres-what-its-like-living-with-long-covid"},"modified":"2022-10-22T19:27:16","modified_gmt":"2022-10-22T19:27:16","slug":"is-this-going-to-be-my-life-now-heres-what-its-like-living-with-long-covid","status":"publish","type":"post","link":"https:\/\/www.africa-press.net\/ghana\/all-news\/is-this-going-to-be-my-life-now-heres-what-its-like-living-with-long-covid","title":{"rendered":"\u2018Is this going to be my life now?\u2019: Here\u2019s what it\u2019s like living with long COVID"},"content":{"rendered":"

Africa-Press – Ghana. <\/strong><\/span>Before catching COVID-19 in December 2020, Adriana Patino\u2019s daily routine involved waking up at 4 a.m. and heading to the pool, where she practiced as a competitive swimmer. She trained twice a day, along with managing a full-time job. Now, she struggles to leave her home.<\/p>\n

\u201cI have neurological damage to the extent that my brain can\u2019t take the stimulation of just being outside,\u201d the 37-year-old told CTVNews.ca in a telephone interview on Wednesday. \u201cI’ve made it up to 10 minutes [before] I have to go back inside and just rest for a few hours.\u201d<\/p>\n

More than three months after her infection, Patino said she was still experiencing symptoms such as fatigue, shortness of breath and difficulty concentrating<\/a>. It was at this point that she was diagnosed with long COVID, or the post COVID-19 condition.Patino is one of dozens of Canadians who contacted CTVNews.ca to share their experiences with long COVID<\/a>. The emailed responses have not all been independently verified.<\/p>\n

According to the World Health Organization<\/a> (WHO), long COVID occurs when physical or psychological symptoms of COVID-19 persist for more than three months after a person has been infected. Symptoms must last for at least two months and cannot be attributed to other causes.<\/p>\n

Data released by Statistics Canada on Oct. 17 shows approximately 1.4 million Canadian adults<\/a> said they had symptoms of COVID-19 at least three months after their infection. But according to the Public Health Agency of Canada<\/a> (PHAC), there is currently no way of clearly diagnosing or treating long COVID.<\/p>\n

Patino said she continues to suffer from lung damage as a result of her post COVID-19 condition, and her heart does not function properly. She has also been diagnosed with dysautonomia, an automatic nervous system disorder that can result in headaches, a racing heart and difficulty sleeping<\/a>.<\/p>\n

Patino speaks with her doctor weekly and alternates between lung and cognitive therapy, in addition to using inhalers and taking beta blockers. She has also received doses of the COVID-19 vaccine, as recommended by her doctor, she said.<\/p>\n

\u201cMy whole day is managing my symptoms, I have to plan things way ahead,\u201d said Patino, who lives in Vancouver. \u201cThis virus took my life but it didn\u2019t kill me.\u201d<\/p>\n

Existing treatments for long COVID are mainly supportive, said Dr. Kieran Quinn, a clinician scientist at the University of Toronto and Sinai Health System.<\/p>\n

\u201cThis means that we use medications and self-education strategies to help people manage their symptoms,\u201d he told CTVNews.ca in a telephone interview on Tuesday. \u201cBut we don’t yet have any treatments that are proven to actually get at the underlying causes and improve [the] quality of life [for those] suffering with long COVID.\u201d<\/p>\n

<\/a>Dallas Bargholz was admitted to a long COVID clinic in Calgary earlier this month. The 39-year-old father of three developed long COVID after his infection in January 2022. Attending the clinic twice a week has helped him better cope with his symptoms, he said, but they haven\u2019t gone away. Bargholz, who is fully vaccinated, continues to struggle with chest pains, shortness of breath and an irregular heartbeat.<\/p>\n

Along with its impact on his physical health, long COVID has also affected his mental health, Bargholz said. Before developing long COVID, he was a professional fighter in the International Medieval Combat Federation, on track to qualify to represent Team Canada at global tournaments.<\/p>\n

But the physical exertion from exercising was making his post-COVID condition so severe that doctors advised him to stop working out, he said. Running and strength training were part of his mental health regime; without them, he began to feel depressed.<\/p>\n

\u201cI didn\u2019t realize how much mental benefit I was receiving from sports,\u201d Bargholz told CTVNews.ca on Wednesday in a telephone interview. \u201cI never had a problem with depression [or] anxiety before [but] it all caught up to me.\u201d<\/p>\n

While he doesn\u2019t consider the long COVID clinic particularly helpful from a physical perspective, it has helped him mentally, said Bargholz. \u201cWhen I first started attending the clinic, they were like, \u2018Let’s talk about feelings,\u2019\u201d he said. \u201cAnd I\u2019m like, \u2018I don\u2019t need this.\u2019 But it’s been more helpful than I anticipated.\u201d<\/p>\n

Diagnosing long COVID can also be a struggle for patients and health-care providers, as the condition can present itself differently from person to person, Quinn said. Additionally, a wide range of symptoms<\/a> have been associated with long COVID<\/a>, and the WHO does not maintain specific list of symptoms used to determine whether or not a person has long COVID. However, common symptoms include fatigue, shortness of breath, heart palpitations, anxiety and depression.<\/p>\n

\u201cNot all long COVID is created equal,\u201d said Quinn. \u201cSome people might have very mild symptoms that persist beyond three months, and some people might have very debilitating symptoms … So you can imagine how that affect the health care that they need.\u201d<\/p>\n

For some patients experiencing long COVID, getting health experts to acknowledge their symptoms has also been a challenge. Raven Thomson from Edmonton said she has been living with long COVID since January. To this day, she continues to experience short-term memory loss and symptoms of chronic fatigue syndrome, which can include difficulty concentrating, headaches and joint pain.<\/p>\n

\u201cSymptoms come in waves, they change constantly which leads doctors to be dismissive,\u201d Thomson wrote in an email to CTVNews.ca on Oct. 14. \u201cI’ve been told it’s all in my head [and you\u2019re] not doing enough to get better.\u201d<\/p>\n

Some of the patients Quinn works with have shared similar stories — not feeling as though other health-care providers are taking their concerns seriously or accepting that their condition is real.<\/p>\n

\u201cThis is a brand new diagnosis from a brand new disease,\u201d Quinn said. \u201cOne of the consequences of that is there are probably many people who are suffering and not getting the help that they may need because it’s not being recognized by themselves or by their health-care providers as long COVID.\u201d<\/p>\n

One way to address some of these challenges is by offering more education and awareness around long COVID, Quinn said. This involves sharing strategies on how patients can manage their own symptoms, as well as better educating providers on how to support those with long COVID.<\/p>\n

It was after being met with skepticism from her family doctor that Patino joined the Facebook support group Long Covid Canada<\/a>. She is now one of the group\u2019s head administrators, managing more than 3,500 members. The membership is growing each month, she said.<\/p>\n

\u201cI\u2019ve made it a personal mission to be as loud as I possibly can,\u201d Patino said. \u201cHaving a support group of people who … understand the struggles that you\u2019re having are absolutely essential because for a lot of us, our own family members don\u2019t believe us.\u201d<\/p>\n

One of the group\u2019s members, Carol Gross, has had long COVID since January. She lives in Parry Sound, Ont., where long COVID medical facilities are limited, she said.<\/p>\n

\u201cAlthough I have been referred to specialists out of town, I have yet to see one,\u201d the 64-year-old wrote in an email to CTVNews.ca on Oct. 14. \u201cI am told wait times are up to two years.<\/p>\n

While trying to cope with her symptoms, the Long Covid Canada Facebook group has been her \u201clifeline,\u201d she said. Gross and other members of the group continue to reach out to all levels of government for additional support for those with long COVID by writing letters and making phone calls.<\/p>\n

Gross\u2019 home province of Ontario, for example, announced it will be making decisions regarding funding for a long COVID strategy in the near future. However, no updates have been shared with the public since the government\u2019s announcement on Sept. 18<\/a>. In its latest budget, the federal government also announced $20 million would be going towards research on the long-term effects of COVID-19 infections<\/a> over the next five years.<\/p>\n

Elaine Binnema said she has also used support groups to get advice from others based on their personal experience with the condition. \u201cIt is very helpful in not feeling alone and normalizing the experience,\u201d Binnema wrote in an email to CTVNews.ca on Oct. 15.<\/p>\n

The 54-year-old resident of Chillliwack, B.C., developed long COVID after contracting the virus in January. Her symptoms include fatigue, head congestion and stomach issues, she said. One of the toughest parts of having long COVID is not knowing how she is going to feel from day to day, said Binnema.<\/p>\n

\u201cOne day might be a little bit better than another, and then the next day you just get back a symptom that you haven’t had [for months],\u201d she said in an interview with CTVNews.ca on Wednesday. \u201cPart of you goes, \u2018Is this going to be my life now?\u2019\u201d<\/p>\n

Melissa Noftall said she is doing what she can to adjust to her new life. Based in Edmonton, the 35-year-old mother of three has been living with COVID-19 symptoms since she caught the virus in March 2021. These include parosmia \u2013 a distorted sense of smell<\/a> \u2013 as well as fatigue and brain fog, she said.<\/p>\n

\u201cI had to adapt my entire life,\u201d she wrote in an email to CTVNews.ca on Oct. 14. \u201cI write everything down [and] I have reminders and routines … I have to constantly tell people why I was so different [than] the person I was before.\u201d<\/p>\n

Living with long COVID has changed her outlook on life as well, Noftall said. \u201cIt changes your perception of things and what\u2019s actually important,\u201d Noftall told CTVNews.ca in a phone interview on Wednesday. \u201cI’m OK with dishes in the sink now, because I’m taking that time with my kids.\u201d<\/p>\n

For More News And Analysis About Ghana<\/a> Follow Africa-Press<\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

Africa-Press – Ghana. Before catching COVID-19 in December 2020, Adriana Patino\u2019s daily routine involved waking up at 4 a.m. and heading to the pool, where she practiced as a competitive swimmer. She trained twice a day, along with managing a full-time job. Now, she struggles to leave her home. \u201cI have neurological damage to the […]<\/p>\n","protected":false},"author":84,"featured_media":26892,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2,3,7,8],"tags":[5092,5096,5334,429,10169],"class_list":["post-26893","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-all-news","category-community","category-head-lines","category-homepage-english","tag-africa-press","tag-africa-press-ghana","tag-covid","tag-ghana","tag-life"],"yoast_head":"\n\u2018Is this going to be my life now?\u2019: Here\u2019s what it\u2019s like living with long COVID - Ghana<\/title>\n<meta name=\"description\" content=\"Before catching COVID-19 in December 2020, Adriana Patino\u2019s daily routine involved waking up at 4 a.m. and heading to th ...\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.africa-press.net\/ghana\/all-news\/is-this-going-to-be-my-life-now-heres-what-its-like-living-with-long-covid\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u2018Is this going to be my life now?\u2019: Here\u2019s what it\u2019s like living with long COVID\" \/>\n<meta property=\"og:description\" content=\"Before catching COVID-19 in December 2020, Adriana Patino\u2019s daily routine involved waking up at 4 a.m. and heading to th ...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.africa-press.net\/ghana\/all-news\/is-this-going-to-be-my-life-now-heres-what-its-like-living-with-long-covid\" \/>\n<meta property=\"og:site_name\" content=\"Ghana\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/AfricaPressTunisiaa\" \/>\n<meta property=\"article:published_time\" content=\"2022-10-22T18:02:13+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2022-10-22T19:27:16+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/static.africa-press.net\/ghana\/sites\/18\/2022\/10\/postQueueImg_8-635443e65ab8e.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1020\" \/>\n\t<meta property=\"og:image:height\" content=\"573\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"cfeditoren\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"cfeditoren\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"7 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.africa-press.net\/ghana\/all-news\/is-this-going-to-be-my-life-now-heres-what-its-like-living-with-long-covid#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.africa-press.net\/ghana\/all-news\/is-this-going-to-be-my-life-now-heres-what-its-like-living-with-long-covid\"},\"author\":{\"name\":\"cfeditoren\",\"@id\":\"https:\/\/www.africa-press.net\/ghana\/#\/schema\/person\/068c7ab4e9634ae78ec5d54ec46598bb\"},\"headline\":\"\u2018Is this going to be my life now?\u2019: Here\u2019s what it\u2019s like living with long COVID\",\"datePublished\":\"2022-10-22T18:02:13+00:00\",\"dateModified\":\"2022-10-22T19:27:16+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.africa-press.net\/ghana\/all-news\/is-this-going-to-be-my-life-now-heres-what-its-like-living-with-long-covid\"},\"wordCount\":1641,\"commentCount\":0,\"image\":{\"@id\":\"https:\/\/www.africa-press.net\/ghana\/all-news\/is-this-going-to-be-my-life-now-heres-what-its-like-living-with-long-covid#primaryimage\"},\"thumbnailUrl\":\"https:\/\/static.africa-press.net\/ghana\/sites\/18\/2022\/10\/postQueueImg_8-635443e65ab8e.jpg\",\"keywords\":[\"Africa Press\",\"Africa Press-Ghana\",\"COVID\",\"ghana\",\"Life\"],\"articleSection\":[\"all news\",\"community\",\"head lines\",\"homepage-english\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/www.africa-press.net\/ghana\/all-news\/is-this-going-to-be-my-life-now-heres-what-its-like-living-with-long-covid#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.africa-press.net\/ghana\/all-news\/is-this-going-to-be-my-life-now-heres-what-its-like-living-with-long-covid\",\"url\":\"https:\/\/www.africa-press.net\/ghana\/all-news\/is-this-going-to-be-my-life-now-heres-what-its-like-living-with-long-covid\",\"name\":\"\u2018Is this going to be my life now?\u2019: Here\u2019s what it\u2019s like living with long COVID - 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