{"id":25094,"date":"2026-02-17T12:00:00","date_gmt":"2026-02-17T12:00:00","guid":{"rendered":"https:\/\/www.africa-press.net\/guinee-bissau\/politique\/bebe-sauve-dune-tumeur-rare-grace-a-un-traitement"},"modified":"2026-02-17T16:10:50","modified_gmt":"2026-02-17T16:10:50","slug":"bebe-sauve-dune-tumeur-rare-grace-a-un-traitement","status":"publish","type":"post","link":"https:\/\/www.africa-press.net\/guinee-bissau\/toutes-les-actualites\/bebe-sauve-dune-tumeur-rare-grace-a-un-traitement","title":{"rendered":"B\u00e9b\u00e9 Sauv\u00e9 D\u2019Une Tumeur Rare Gr\u00e2ce \u00c0 un Traitement"},"content":{"rendered":"

Africa-Press – Guinee Bissau. <\/strong><\/span>Vers la fin du septie\u0300me mois de grossesse, la tumeur (syndrome de Kasabach Merritt), pre\u0301sentant un tre\u0300s haut risque de de\u0301ce\u0300s in utero, est de\u0301tecte\u0301 sur le foetus a\u0300 la maternite\u0301 de Mulhouse. Une masse pre\u0301sente au niveau du cou risquait de \u00ab comprimer la respiration \u00bb du be\u0301be\u0301, explique le docteur Chris Minella, me\u0301decin re\u0301fe\u0301rent du Centre pluridisciplinaire de diagnostic pre\u0301natal des Ho\u0302pitaux universitaires de Strasbourg, lundi, lors d\u2019une confe\u0301rence de presse a\u0300 l\u2019ho\u0302pital Femme-me\u0300re-enfant de Mulhouse (Haut-Rhin).<\/p>\n

La tume\u0301faction grandissait tre\u0300s vite, atteignant toute la base du visage du be\u0301be\u0301. Apre\u0300s avoir e\u0301tabli le diagnostic, le centre de re\u0301fe\u0301rence des anomalies vasculaires superficielles des Hospices civils de Lyon, spe\u0301cialiste de ces pathologies rares, a propose\u0301 de recourir au traitement ante\u0301natal par Sirolimus, sous la direction du professeur Laurent Guibaud.<\/p>\n

\u00ab Le seul moyen de sauver ce be\u0301be\u0301 \u00bb<\/b><\/p>\n

C\u2019e\u0301tait \u00ab le seul moyen de sauver ce be\u0301be\u0301 \u00bb, explique a\u0300 l\u2019AFP le professeur Guibaud, joint par te\u0301le\u0301phone. Le syndrome de Kasabach Merritt est \u00ab une tumeur tre\u0300s agressive. Elle a comme particularite\u0301 d\u2019aspirer les plaquettes, les plaquettes e\u0301tant un e\u0301le\u0301ment important pour la coagulation. Le be\u0301be\u0301 se retrouve avec un taux de plaquettes tre\u0300s bas et soumis a\u0300 des he\u0301morragies qui peuvent e\u0302tre fatales \u00bb, selon le professeur Guibaud.<\/p>\n

Issa, 3 mois, soigne\u0301 in utero d\u2019une tumeur vasculaire rare, au service de pe\u0301diatrie de jour du GHRMSA (Groupe Hospitalier de la Re\u0301gion de Mulhouse et Sud-Alsace), le 16 fe\u0301vrier 2026 a\u0300 Mulhouse, dans le Haut-Rhin (AFP \u2013 SEBASTIEN BOZON)<\/p>\n

Le petit Issa pre\u0301sentait \u00ab des signes de souffrance laissant supposer que sa coagulation devait commencer a\u0300 e\u0302tre de\u0301fectueuse \u00bb. En accord avec les me\u0301decins et la famille, il est de\u0301cide\u0301 d\u2019administrer un traitement ante\u0301natal, le Sirolimus, un antiangioge\u0301nique (qui limite la prolife\u0301ration des vaisseaux). Le me\u0301dicament, administre\u0301 par voie orale a\u0300 la me\u0300re, passe la barrie\u0300re placentaire et atteint le foetus, permettant de freiner la croissance de la tumeur.<\/p>\n

\u00ab C\u2019est un traitement exceptionnel qui a permis de sauver ce petit garc\u0327on \u00bb<\/b><\/p>\n

\u00ab C\u2019est la premie\u0300re fois que ce traitement a e\u0301te\u0301 utilise\u0301 en ante\u0301natal pour traiter une tumeur vasculaire de ce type-la\u0300 \u00bb, souligne le pr Guibaud. Le 14 novembre 2025, Issa nai\u0302t par ce\u0301sarienne a\u0300 la maternite\u0301 de Hautepierre a\u0300 Strasbourg. La taille de la tumeur a diminue\u0301 et il n\u2019a pas besoin d\u2019e\u0302tre intube\u0301 pour respirer. Son taux de plaquettes est toutefois assez bas, ce qui ne\u0301cessite une transfusion plaquettaire.<\/p>\n

\u00ab C\u2019est un traitement exceptionnel qui a permis de sauver ce petit garc\u0327on, avec une malformation qui a e\u0301te\u0301 stabilise\u0301e \u00bb, se fe\u0301licite le Dr Alexandra Spiegel-Bouhadid, he\u0301matologue du service de pe\u0301diatrie du GHR Mulhouse Sud-Alsace, qui suit Issa depuis sa naissance.<\/p>\n

Cette the\u0301rapie ante\u0301natale permettant de soigner de volumineuses malformations vasculaires, possiblement le\u0301tales, avait e\u0301te\u0301 de\u0301voile\u0301e en aou\u0302t par le Centre de re\u0301fe\u0301rence des anomalies vasculaires superficielles (CRMR AVS) des Hospices civils de Lyon. Elle avait de\u0301ja\u0300 e\u0301te\u0301 utilise\u0301e pour soigner d\u2019autres types de malformations mais pas pour le syndrome dont souffre Issa.<\/p>\n

\u00ab Malgre\u0301 sa tumeur, c\u2019est un enfant normal, il mange bien, il grandit bien \u00bb<\/b><\/p>\n

\u00ab Maintenant, tout le challenge c\u2019est d\u2019optimiser cette prise en charge en ante\u0301natal pour la proposer a\u0300 d\u2019autres le\u0301sions vasculaires de ce type-la\u0300 \u00bb, expose le professeur Guibaud.<\/p>\n

Aujourd\u2019hui, Issa, 3 mois, pre\u0301sente une masse en bas du visage mais est un be\u0301be\u0301 souriant et e\u0301veille\u0301. \u00ab Malgre\u0301 sa tumeur, c\u2019est un enfant normal, il mange bien, il grandit bien \u00bb, se re\u0301jouit sa me\u0300re Viviane, 34 ans. Le nourrisson a pu rentrer au domicile familial un mois apre\u0300s sa naissance et be\u0301ne\u0301ficie d\u2019un suivi re\u0301gulier a\u0300 l\u2019ho\u0302pital de Mulhouse. Il continue le traitement au Sirolimus.<\/p>\n

\u00ab Pour le voir toutes les semaines, je peux vous dire qu\u2019il va tre\u0300s bien. Il tient tre\u0300s bien sa te\u0302te, il fait des beaux sourires \u00bb, constate le Dr Alexandra Spiegel-Bouhadid. \u00ab C\u2019e\u0301tait tre\u0300s stressant \u00bb, te\u0301moigne la me\u0300re du nourrisson, \u00ab mais on a bien fait de garder espoir: il est la\u0300 \u00bb.<\/p>\n

Pour plus d’informations et d’analyses sur la Guinee Bissau<\/span>, suivez Africa-Press<\/span><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

Africa-Press – Guinee Bissau. Vers la fin du septie\u0300me mois de grossesse, la tumeur (syndrome de Kasabach Merritt), pre\u0301sentant un tre\u0300s haut risque de de\u0301ce\u0300s in utero, est de\u0301tecte\u0301 sur le foetus a\u0300 la maternite\u0301 de Mulhouse. Une masse pre\u0301sente au niveau du cou risquait de \u00ab comprimer la respiration \u00bb du be\u0301be\u0301, explique le […]<\/p>\n","protected":false},"author":82,"featured_media":25093,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[22,10],"tags":[50],"class_list":["post-25094","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-divers","category-toutes-les-actualites","tag-guinee-bissau"],"yoast_head":"\nB\u00e9b\u00e9 Sauv\u00e9 D\u2019Une Tumeur Rare Gr\u00e2ce \u00c0 un Traitement - Guin\u00e9e Bissau<\/title>\n<meta name=\"description\" content=\"Vers la fin du septie\u0300me mois de grossesse, la tumeur (syndrome de Kasabach Merritt), pre\u0301sentant un tre\u0300s haut risque d ...\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.africa-press.net\/guinee-bissau\/toutes-les-actualites\/bebe-sauve-dune-tumeur-rare-grace-a-un-traitement\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"B\u00e9b\u00e9 Sauv\u00e9 D\u2019Une Tumeur Rare Gr\u00e2ce \u00c0 un Traitement\" \/>\n<meta property=\"og:description\" content=\"Vers la fin du septie\u0300me mois de grossesse, la tumeur (syndrome de Kasabach Merritt), pre\u0301sentant un tre\u0300s haut risque d ...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.africa-press.net\/guinee-bissau\/toutes-les-actualites\/bebe-sauve-dune-tumeur-rare-grace-a-un-traitement\" \/>\n<meta property=\"og:site_name\" content=\"Guin\u00e9e Bissau\" \/>\n<meta property=\"article:published_time\" content=\"2026-02-17T12:00:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-02-17T16:10:50+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/static.africa-press.net\/guinee-bissau\/sites\/55\/2026\/02\/sm_1771373357.847219.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1280\" \/>\n\t<meta property=\"og:image:height\" content=\"720\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"cfeditorfr\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"cfeditorfr\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.africa-press.net\/guinee-bissau\/toutes-les-actualites\/bebe-sauve-dune-tumeur-rare-grace-a-un-traitement#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.africa-press.net\/guinee-bissau\/toutes-les-actualites\/bebe-sauve-dune-tumeur-rare-grace-a-un-traitement\"},\"author\":{\"name\":\"cfeditorfr\",\"@id\":\"https:\/\/www.africa-press.net\/guinee-bissau\/#\/schema\/person\/2b1cf3cd81a31e3cd26889ca66d677f1\"},\"headline\":\"B\u00e9b\u00e9 Sauv\u00e9 D\u2019Une Tumeur Rare Gr\u00e2ce \u00c0 un Traitement\",\"datePublished\":\"2026-02-17T12:00:00+00:00\",\"dateModified\":\"2026-02-17T16:10:50+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.africa-press.net\/guinee-bissau\/toutes-les-actualites\/bebe-sauve-dune-tumeur-rare-grace-a-un-traitement\"},\"wordCount\":778,\"commentCount\":0,\"image\":{\"@id\":\"https:\/\/www.africa-press.net\/guinee-bissau\/toutes-les-actualites\/bebe-sauve-dune-tumeur-rare-grace-a-un-traitement#primaryimage\"},\"thumbnailUrl\":\"https:\/\/static.africa-press.net\/guinee-bissau\/sites\/55\/2026\/02\/sm_1771373357.847219.jpg\",\"keywords\":[\"Guinee Bissau\"],\"articleSection\":[\"Divers\",\"Toutes les actualit\u00e9s\"],\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/www.africa-press.net\/guinee-bissau\/toutes-les-actualites\/bebe-sauve-dune-tumeur-rare-grace-a-un-traitement#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.africa-press.net\/guinee-bissau\/toutes-les-actualites\/bebe-sauve-dune-tumeur-rare-grace-a-un-traitement\",\"url\":\"https:\/\/www.africa-press.net\/guinee-bissau\/toutes-les-actualites\/bebe-sauve-dune-tumeur-rare-grace-a-un-traitement\",\"name\":\"B\u00e9b\u00e9 Sauv\u00e9 D\u2019Une Tumeur Rare Gr\u00e2ce \u00c0 un Traitement - 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