{"id":13707,"date":"2022-04-29T09:50:54","date_gmt":"2022-04-29T09:50:54","guid":{"rendered":"https:\/\/www.africa-press.net\/lesotho\/all-news\/call-for-national-support-for-haemophilia-patients"},"modified":"2022-04-29T10:15:23","modified_gmt":"2022-04-29T10:15:23","slug":"call-for-national-support-for-haemophilia-patients","status":"publish","type":"post","link":"https:\/\/www.africa-press.net\/lesotho\/all-news\/call-for-national-support-for-haemophilia-patients","title":{"rendered":"Call for national support for haemophilia patients"},"content":{"rendered":"

Africa-Press – Lesotho. <\/strong><\/span>Haemophilia Association of (HAL) has written a petition to the of Lesotho to ensure the availability of injections and affordability of medication for Haemophilia disease.<\/p>\n

The petition which was delivered to the Minister of Health Hon. Semano Sekatle last Friday urges the government to address the inherited bleeding disorders in the national policy.<\/p>\n

Every year, April 17 is commemorated as the World Haemophilia Day. The celebration was however done later, seeing Lesotho Defence Force (LDF) band parading around town to the health headquarters with intention to spread the<\/p>\n

word about this rare disorder. The theme for this the event was \u201cLets screen and Diagnose\u201d. HAL chairperson Moeketsi Mootisa explained Haemophilia as a rare disorder in which the blood does not clot in the typical way because<\/p>\n

it does not have enough blood-clotting proteins. He said if one have haemophilia, they might bleed for a longer time after an injury than they would if their<\/p>\n

blood clotted properly. Again, Mootisa said this incurable inherited bleeding disorder only affects males while females are just carriers. Symptoms of haemophilia<\/p>\n

include blood in urine and faeces or stool joint pain and swelling, excessive or easy bleeding, large and deep bruises, frequent nosebleeds, bleeding gums and irritability especially in children.<\/p>\n

Mootisa, as a person living with severe Haemophilia, said he wishes that injections could be availed to patients in their respective homes because haemophilia<\/p>\n

injections in Lesotho are only available in health facilities. He informed that with haemophilia, a simple bump on the head can cause bleeding into the brain for some people who have severe symptoms.<\/p>\n

He said the cost of medication and treatment of haemophilia is very expensive, while again with that disorder, patients are expected to self-infuse or be<\/p>\n

infused by relatives and caregivers at home to avoid excessive loss of blood. Only one injection of haemophilia factor costs approximately M3000.00, which is<\/p>\n

the medication that promotes blood clotting. Mootisa urged the government to make screening, treatment accessibility, affordability and refill systems networks<\/p>\n

to be available at the main concentration services and camps because there is evidence that lives of boys and men were lost, through haemophilia, saying the<\/p>\n

situation was at the worst case during lockdowns because of lack of medication. Mootisa said multi-sectoral participation is highly needed to ease the burden of Haemophilia<\/p>\n

in Lesotho as the Ministry of Education and Training (MoET) needs to play part in Early Child Care Development (ECCD), and primary school care, that of Law<\/p>\n

and Constitutional Affairs should offer services for liability and redress and Ministry of Finance allocate budgets for treatment of haemophilia patients and<\/p>\n

those with rare bleeding disorders. The Minister of Health Hon. Semano Sekatle said he will present the letters in parliament and find the way forward for this rare disorder so that injection<\/p>\n

could be made available to patients at home because hemophilia is a serious illness. Amohelang Moeti, a Qacha\u2018s Nek resident living with severe haemophilia said it is very<\/p>\n

challenging to live with this disorder because most of the time there is no medication in his district so he constantly has to use public transport to<\/p>\n

travel to Maseru to get injections at Queen \u2018Mamohato Memorial Hospital where they are mostly available or get a referral to Bloemfontein. Moeti also said he is homebound because he is unable to work as he cannot lift heavy materials.<\/p>\n

For More News And Analysis About Lesotho<\/a> Follow Africa-Press<\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

Africa-Press – Lesotho. Haemophilia Association of (HAL) has written a petition to the of Lesotho to ensure the availability of injections and affordability of medication for Haemophilia disease. The petition which was delivered to the Minister of Health Hon. Semano Sekatle last Friday urges the government to address the inherited bleeding disorders in the national […]<\/p>\n","protected":false},"author":84,"featured_media":13706,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2,3,8,16],"tags":[233,246,424,245],"class_list":["post-13707","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-all-news","category-community","category-homepage-english","category-twitter","tag-africa-press","tag-africa-press-lesotho","tag-government","tag-lesotho"],"yoast_head":"\nCall for national support for haemophilia patients - Lesotho<\/title>\n<meta name=\"description\" content=\"Haemophilia Association of (HAL) has written a petition to the of Lesotho to ensure the availability of injections and ...\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.africa-press.net\/lesotho\/all-news\/call-for-national-support-for-haemophilia-patients\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Call for national support for haemophilia patients\" \/>\n<meta property=\"og:description\" content=\"Haemophilia Association of (HAL) has written a petition to the of Lesotho to ensure the availability of injections and ...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.africa-press.net\/lesotho\/all-news\/call-for-national-support-for-haemophilia-patients\" \/>\n<meta property=\"og:site_name\" content=\"Lesotho\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/AfricaPressTunisiaa\" \/>\n<meta property=\"article:published_time\" content=\"2022-04-29T09:50:54+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2022-04-29T10:15:23+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/static.africa-press.net\/lesotho\/sites\/62\/2022\/04\/postQueueImg_11.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"720\" \/>\n\t<meta property=\"og:image:height\" content=\"540\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"cfeditoren\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"cfeditoren\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.africa-press.net\/lesotho\/all-news\/call-for-national-support-for-haemophilia-patients#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.africa-press.net\/lesotho\/all-news\/call-for-national-support-for-haemophilia-patients\"},\"author\":{\"name\":\"cfeditoren\",\"@id\":\"https:\/\/www.africa-press.net\/lesotho\/#\/schema\/person\/068c7ab4e9634ae78ec5d54ec46598bb\"},\"headline\":\"Call for national support for haemophilia patients\",\"datePublished\":\"2022-04-29T09:50:54+00:00\",\"dateModified\":\"2022-04-29T10:15:23+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.africa-press.net\/lesotho\/all-news\/call-for-national-support-for-haemophilia-patients\"},\"wordCount\":578,\"commentCount\":0,\"image\":{\"@id\":\"https:\/\/www.africa-press.net\/lesotho\/all-news\/call-for-national-support-for-haemophilia-patients#primaryimage\"},\"thumbnailUrl\":\"https:\/\/static.africa-press.net\/lesotho\/sites\/62\/2022\/04\/postQueueImg_11.jpg\",\"keywords\":[\"Africa Press\",\"Africa Press-Lesotho\",\"government\",\"Lesotho\"],\"articleSection\":[\"all news\",\"community\",\"homepage-english\",\"twitter\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/www.africa-press.net\/lesotho\/all-news\/call-for-national-support-for-haemophilia-patients#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.africa-press.net\/lesotho\/all-news\/call-for-national-support-for-haemophilia-patients\",\"url\":\"https:\/\/www.africa-press.net\/lesotho\/all-news\/call-for-national-support-for-haemophilia-patients\",\"name\":\"Call for national support for haemophilia patients - 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