{"id":29283,"date":"2022-04-07T16:19:31","date_gmt":"2022-04-07T16:19:31","guid":{"rendered":"https:\/\/www.africa-press.net\/uganda\/all-news\/inside-oulanyahs-battle-with-cancer"},"modified":"2022-04-07T17:34:11","modified_gmt":"2022-04-07T17:34:11","slug":"inside-oulanyahs-battle-with-cancer","status":"publish","type":"post","link":"https:\/\/www.africa-press.net\/uganda\/all-news\/inside-oulanyahs-battle-with-cancer","title":{"rendered":"Inside Oulanyah\u2019s battle with cancer"},"content":{"rendered":"

Africa-Press – Uganda. <\/strong><\/span>Family, friends and workmates have eulogised him as a fighter, and an unrelenting character who lived life on the roll.<\/p>\n

But the fun-loving and strong will belied a terminal disease — a recurrent lymphoma cancer — that for two years aggressively ate the body of Jacob Oulanyah, former Speaker of the 11th Parliament.<\/p>\n

A lot of this battle happened in secrecy. He awed onlookers and parliamentary staff when he cruised, including to the House, on his gigantic BMW motorbike.<\/p>\n

Oulanyah, who died shy of his 57th birthday, had fervently chased his political dreams and retained his Omoro County Member of Parliament seat, won the ruling National Resistance Movement (NRM) party\u2019s national vice chairman for northern Uganda slot and, last May, was voted Speaker of the 11th Parliament, making him Uganda\u2019s third-most important citizen.<\/p>\n

READ:<\/b><\/p>\n

Revealed: The four people who flew with Oulanyah to Seattle<\/p>\n

For the tough political fights and huge electoral investments, the sudden deterioration in Oulanyah\u2019s health, which culminated in his demise last month in the United States, was an anticlimax that took majority Ugandans by surprise, leading to widespread rumours about the killer illness.<\/p>\n

However, one man who walked with Oulanyah behind the scenes on his journey of failing health over the past two years was Dr Jackson Orem, the director of Uganda Cancer Institute.<\/p>\n

In a speech at yesterday\u2019s state funeral for the former speaker at Kololo Ceremonial Grounds in Kampala, the oncologist, to the rapt attention of mourners, made public hitherto unreported details of Oulanyah\u2019s on-and-off illness, which started in 2019.<\/p>\n

The trigger was a mass, or lump, discovered on the left side of his neck, which to his shock was confirmed cancerous.<\/p>\n

A separate re-examination conducted privately at a German hospital found that Oulanyah was battling stage-three of lymphoma cancer.<\/p>\n

The lymphatic system comprises the body\u2019s defence network and so, according to Dr Orem, doctors were hopeful the then Omoro County legislator would recover if treatment commenced promptly.<\/p>\n

\u201cIt [the cancer spread] had gone far, but not yet too far and [could] still be treated. He opted for the treatment privately, and within weeks, it was started,\u201d he said.<\/p>\n

This required Oulanyah to stay in Germany for five months in order to receive six cycles of chemotherapy.<\/p>\n

In October 2019, the time Oulanyah discovered his illness, he was serving as Deputy Speaker and Ms Rebecca Kadaga was the substantive Speaker.<\/p>\n

In her eulogy during the special Parliamentary sitting on Tuesday, Ms Kadaga said Oulanyah was unavailable for work and regularly flew to Germany, but concealed the purpose of the travels.<\/p>\n

As a result, it appeared he either didn\u2019t want to work or was being insubordinate, if not both, leading to clashes between him and Ms Kadaga, a fall-out that boiled over to factionalise Parliament staff and, on occasion, paralysed House business as both principals would be out of the country at the same time.<\/p>\n

Revelations that Oulanyah would be abroad seeking treatment for a terminal illness, Ms Kadaga said, sadly meant she learnt of the fact posthumously, and she forgave him.<\/p>\n

At Kololo, Dr Orem said Oulanyah returned from Germany in February 2020, just as then nascent Covid pandemic was forcing countries to shut frontiers.<\/p>\n

Consequently, he was unable to return to Europe, yet he had only received two cycles of chemotherapy.<\/p>\n

As a stop-gap measure, a team of specialists at Uganda Cancer Institute started Oulanyah on treatment, and he completed the remaining four cycles.<\/p>\n

The Covid-induced international airspace closures lasted longer, inordinately delaying the return of the then deputy Speaker to Germany for review and re-staging of the cancer, and to establish the effectiveness of Uganda treatment.<\/p>\n

\u201cThe person who stages the [cancer] patient knows better and we had planned that we go back to Germany, because those are the people who do the re-staging. We thought by time the Covid-19 lockdown would be over. Unfortunately, that was not to be and Germany was closed and we could not go [for Oulanyah\u2019s review],\u201d Dr Orem said.<\/p>\n

In May 2020, after two extra cycles of chemotherapy at Uganda Cancer Institute, Oulanyah was in remission, a medical term to mean that the cancer could not, at the time, be seen in his body.<\/p>\n

And the political season, the start of preparations for the January 2021 elections, were underway. Oulanyah had his eyes set on retaining the Omoro County parliamentary seat as a springboard for the future speakership race.<\/p>\n

So, specialists, according to Dr Orem, decided to focus on the next level of his treatment, which is the STEM Cell transplant. \u201cI told him (Oulanyah that) I was available anytime to start [him on the treatment]. Unfortunately, he got rather occupied with other duties including duties of Parliament, and because of that it took us time before we met. The next time he called me was six months later,\u201d he said.<\/p>\n

The lapse in time meant it was November 2020 when campaigns for vote that was only two months away had hit a crescendo.<\/p>\n

Oulanyah informed Dr Orem that the mass on the left side of his neck had resurfaced. Put another way, the cancer was back, and a new phase of treatment had to start.<\/p>\n

ALSO READ:<\/b><\/p>\n

Jacob Oulanyah\u2019s funeral and northern Uganda\u2019s \u2018walking dead\u2019<\/p>\n

By April and May 2021, after Oulanyah had won both the MP seat and Speakership, he was positively responding to medication, and showing \u201cremarkable improvement\u201d.<\/p>\n

With both political wins, duty called him, fast and furious. He had been sworn in as Speaker of the 11th Parliament on May 24, and he pressed with acceleration his commitment to turn the House of people\u2019s representatives around to be people-centred and of high-quality debate.<\/p>\n

Thus, he plunged headlong into work, skipping treatment and exhausting a failing body.<\/p>\n

Before long, he disappeared from public view, sparking initial claims that he was likely down with Covid.<\/p>\n

But no. Instead, he had undergone a procedure which created complications that necessitated him to be airlifted to Dubai, in the United Arab Emirates, for specialised surgery.<\/p>\n

\u201cHis care got complicated, that meant a completely different situation on our hands\u2026in that situation, and the cancer issue takes a back seat, because the emergency was saving him from the complication of the surgery,\u201d Dr Orem recounted.<\/p>\n

Oulanyah returned to Parliament, for the first time in many weeks, on July 29, 2021 and he looked physically weakened and darker.<\/p>\n

He continued treatment in Uganda, but by October, Dr Orem said, he lost communication with his patient \u201cwho was going somewhere\u201d.<\/p>\n

\u201cThe next time I heard from him, was through Minister [for Health Ruth] Aceng, in the middle of January, this year. He was not well at all, and [we] decided to quietly admit him in Mulago (Women\u2019s Specialist Hospital) \u2026 my first question to him was: \u2018Rt Hon Speaker, what have I done to you? Why have you done this to us?\u2019 And what he said was, \u2018my brother, help me\u2019,\u201d Dr Orem said.<\/p>\n

Oulanyah had been a difficult patient not only for his doctors. Workmates who got to know about his condition had hard time convincing him to reach a hospital.<\/p>\n

Among the pleaders was Ms Anita Among, who then was Deputy Speaker but has since been elected Oulanyah\u2019s successor, who revealed that she on occasions enlisted Chief Justice Owiny-Dollo and Democratic Party president Norbert Mao to cajole and convince and unwilling Oulanyah to seek treatment.<\/p>\n

During yesterday\u2019s funeral service, Justice Owiny-Dollo said Oulanyah regretted not knowing about his condition early, which he said could have potentially resulted differently.<\/p>\n

Between January and early February, Mulago doctors worked to stabilise Oulanyah, some of whose organs had started failing, so that he could be fit to fly overseas for specialist care.<\/p>\n

Dr Orem said he recommended that the then Speaker be taken to the Washington University Medical Centre in Seattle, in the west Pacific coast of the United States, because the facility presented the best option for line four treatments since all first three lines had been exhausted in vain.<\/p>\n

In February, Mr Oulanyah was evacuated aboard a chartered Uganda Airlines plane, which was not retrofitted as an air ambulance, via Iceland to the US in readiness for procedures which included resolving problems of a suppressed bone marrow.<\/p>\n

Doctors in Seattle targeted to cure him using Chimeric Receptor T Cell Therapy (CAR-T). The procedure involves harvesting the bone marrow cells, modifying them to develop the receptors and infusing them again in the patient to attack the cancer cells.<\/p>\n

Oulanyah was deemed ready for the treatment within a fortnight, Dr Orem said yesterday, but he then unexpectedly developed fever, viral and bacterial infections and his bone marrow became unresponsive.<\/p>\n

\u201cThat is the issue why he never got the true treatment that we thought was going to be the magic bullet to cure him \u2026 the accurate cause of death is what the minister [stated] and I do not think there is any other cause that you should be thinking about,\u201d he said.<\/p>\n

In a detailed report to Parliament on Tuesday that she said was the autopsy findings, Dr Aceng said the immediate cause of Oulanyah\u2019s death, contrary to claims by his father Nathan Okori that his son was poisoned, was multiple failure of vital body organs — the heart, lungs, liver and kidney.<\/p>\n

President Museveni announced the death of the former Speaker, who is due to be buried in his Lalogi ancestral home in Omoro tomorrow, on March 20 and he yesterday took exception that minister Aceng, and other government officials, had made the cause of his death public.<\/p>\n

In the Tuesday speech, Dr Aceng cited the removal of Oulanyah\u2019s spleen after government soldiers tortured him during a students\u2019 strike at Makerere University in the early 1990s, as a \u201ccontributory factor\u201d to challenges in his treatment and eventual demise.<\/p>\n

In no-holds-barred comments, President Museveni regretted that he learnt about Oulanyah\u2019s illness late, and suggested he would have dissuaded him from running for MP and speakership if he was aware in time.<\/p>\n

\u201c\u2026 I would have told him to concentrate on health, but I did not know [he was sick]. Health is wealth and is a weapon and you need to look after it very carefully,\u201d Mr Museveni said, quoting the Bible multiple times to buttress his point that one reaps what they sow.<\/p>\n

He said the ruling NRM supported Oulanyah\u2019s bid for Speaker of Parliament because he was a \u201cgood cadre\u201d, and rebuked tribalised public altercations triggered by the death of \u201ca patriot\u201d.<\/p>\n

DON’T MISS:<\/b><\/p>\n

If I\u2019d known Oulanyah was sick, I would have advised him to focus on health \u2013 Museveni<\/p>\n

Oulanyah\u2019s first daughter, Ms Diana Aceng, who works as a nurse in the US state of Arizona, said her father had asked her to keep his health confidential.<\/p>\n

\u201cWhen I saw my father, I was in shock, I just looked down, but \u2026 [thought] he was going to get out because he [was] a fighter … [However], the first time I saw him, he told me \u2018my time has come\u2019,\u201d she said.<\/p>\n

Ill health<\/b><\/p>\n

For the tough political fights and huge electoral investments, the sudden deterioration in Oulanyah\u2019s health, which culminated in his demise last month in the United States, was an anticlimax that took majority Ugandans by surprise, leading to widespread rumours about the killer illness.<\/p>\n

[email protected]<\/b><\/p>\n

For More News And Analysis About Uganda<\/a> Follow Africa-Press<\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

Africa-Press – Uganda. Family, friends and workmates have eulogised him as a fighter, and an unrelenting character who lived life on the roll. 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